I noticed this moth earlier this week - a fairly large one, compared to the others that I had seen of late, and one that I had not noticed before. I especially liked the hint of olive green in the wing tips of this one - it's really a beautiful shade of green.
I think it's important to notice things. But perhaps sometimes you try to notice too much.
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I don't do well with my mom's oncologist. My brother and I have found that it is better if I give him questions, and let him do the calling and talking - which doesn't mean that it is easier for him, it's not, it's just that he's probably a little (alot) more effective than I would be.
I just get frustrated.
Monday is my mom's last round - the last of 8 three-week treatments - of her chemotherapy 'cocktail'. So far she has responded well - amazingly so - both of her CT scans since diagnosis have shown shrinking of all of the areas of her lung affected by the cancer. Only 40% of individuals respond favorable at all to this treatment, and mom is in the upper percentile in terms of her favorable response.
We should feel grateful, and deep down - we do.
She still has cancer. That's just the reality - but after these eight treatments, it has been pushed back quite substantially, and also - as importantly - her symptoms have been virtually eliminated and her quality of life has been good.
But this is where I struggle: after Monday's treatment, she is going off the chemotherapy. I had my brother ask 'Why?' (the obvious question) and the response was 'That's the protocol'. After Monday, she'll just receive Avastin every three weeks. Most cancer treatments are based on statistics - chemotherapy protocols are developed based on the average responses - and aren't really designed for those that lie on either end of the bell curve. This is always where my conversations with the oncologist break down.
I want to scream to the oncologist that 'my Mom is an exception!' when of course I realize that everyone's Mom is an exception.
Human beings aren't statistics.
I hate protocols. Protocols need constant updating and revision, constant experimentation to see where and how they can be improved. I feel like I should be able to do this - that if I read enough, if I read just one more article on non-small cell lung cancer that I'll be able to figure it out (which is stupid, because there are thousands of people out there, so much more qualified than I, trying to figure it out - I tell myself that it is both arrogant and silly for me to think this, but it's a thought that is persistently roaming around in my head, pillaging perfectly reasonable thoughts).
~~~~~
This would now be a footnote: Last summer, a woman came to visit our program - to meet with our students, faculty, and graduate students - and to present a seminar on her research. I had been in contact with her to coordinate her trip, and she had been a pretty rotten communicator throughout our correspondence - and when she arrived and we went out to dinner, she apologized for her sporadic communication and said that her mother had been diagnosed with a prion disease (an unknown prion disease) six months earlier and had just died. We talked that evening about how strange and odd prions are - and she said that they were a 'hidden' disease, that they were more frequently diagnosed (by elimination of other diseases or a brain biopsy) than people realized, and yet next-to-nothing was known about them. She struggled, throughout her mother's illness, because she couldn't - through her research in genomics - learn enough to save her mother. This woman has now begun a project in her laboratory that focuses on the prion proteins.
There are alot of cancer researchers out there in the world already (I tell myself each day).
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But decisions have to be made. I sense that she is struggling with going 'off' chemotherapy - part of her is thinking 'this is good!' but I can tell that she knows that it is not. My brother and I need to help her find out what other options are available to her - because she is truly the exception to our family.
~~~~~
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There’s a kind of white moth, I don’t know what kind, that glimmers by mid-May in the forest, just as the pink mocassin flowers are rising.
If you notice anything, it leads you to notice more and more.
And anyway I was so full of energy. I was always running around, looking at this and that.
If I stopped the pain was unbearable.
If I stopped and thought, maybe the world can’t be saved, the pain was unbearable.
Finally, I noticed enough. All around me in the forest the white moths floated.
How long do they live, fluttering in and out of the shadows?
You aren’t much, I said one day to my reflection in a green pond, and grinned.
The wings of the moths catch the sunlight and burn so brightly.
At night, sometimes, they slip between the pink lobes of the moccasin flowers and lie there until dawn, motionless in those dark halls of honey. |
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